The Coalition for Hemophilia B strives to make quality of life the focal point of treatment for individuals with Hemophilia B in the 21st century

The Coalition for Hemophilia B was founded in 1990 by Joyce and John Taylor when their son was diagnosed with moderate/severe Hemophilia B. Formed as a way of providing information about treatment options to patients and their families, as well as instigating and funding research and product development, the Coalition provides information about treatment that will improve quality of life, works to define new treatment modalities, and support efforts to eliminate the disease.


Become a Member!

Membership is free. Complete our membership form and you will receive our quarterly newsletter and an official welcome kit. You'll also be able to apply for patient & travel assistance grants and so much more. And if you want a T-shirt, just tell us your size. Join today!


Apply Now for a Travel Grant to Our 2019 Annual Symposium

Deadline is September 15, 2018, to return your travel grant application (formerly known as the lotto form) for airfare and three nights' hotel. The 2019 symposium will be held Thursday March 14 - Sunday March 17 at the Renaissance Orlando at SeaWorld. Download the application here.

APPLY BY 9/15/18

Our symposium is the largest annual gathering exclusively for families and individuals affected by hemophilia B. Watch our Events page for more news about Symposium 2019.


Register for Our Meetings on the Road

We're traveling coast to coast, from Pittsburgh to Anaheim, for 10 family meetings this fall. If we are in your area, meet us halfway by registering early and registering online. All meetings are Saturdays. All meetings are FREE for those with hemophilia B.

Pittsburgh PA: September 22. Details on our Events page.


Charlotte NC: October 6. Details on our Events page.


Albuquerque NM: October 6. Details on our Events page.


Princeton NJ: November 3. Details on our Events page.


Richmond VA: November 10. Details on our Events page.


Denver CO: November 10. Details on our Events page.


Anaheim CA: November 17. Details on our Events page.


San Francisco: November 17. Details on our Events page.


Cortland NY: December 1. Details on our Events page.


San Antonio TX: December 1. Details on our Events page.


Join Us in Advocacy

Why advocate for the B community? We have six good reasons. Read More.



Featured Video

BScene:  Hillary Goldrick


Helpful Resources
Information on treatment, scholarships, insurance assistance, and more. We also offer several booklets and DVDs that can be sent to you free of charge.
More Info

Important News
Keep up-to-date with relevant news for the hemophilia community. We  publish quarterly Factor IX News, the only newsletter of its kind!
More Info

messageicon.png

Interact
Contact the Coalition and follow us on social media to connect with us and other members of the hemophilia B community.
More Info

Programs
With a family-oriented and hands-on approach, we interact daily with the hemophilia community online and  through educational symposiums, family meetings, support groups, and retreats. 
More Info

Expert Team
Guided by a board of researchers, doctors, lawyers, parents, and patients, our team has over 27 years’ experience with hemophilia B. 
More Info

Mission
We seek to educate, ensure access to the highest standard of care, and empower people with hemophilia, and their families, to advocate on their own behalf.
More Info

Important Facts and FAQs
Learn more about hemophilia B: the condition, its transmission, treatment options, and more.
More Info

Donate
You can further the important mission of the Coalition for Hemophilia B and help provide more programs, resources, and support to the hemophilia community.
More Info