Become a Coalition Member!
Membership is free. Complete our membership form to receive our quarterly Factor Nine newsletter and an official welcome kit. You'll also be able to apply for patient and travel assistance grants and more. If you want a T-shirt, just tell us your size. Join today!
Support Our Mission
The Coalition for Hemophilia B strives to make quality of life the focal point of treatment for people with hemophilia B and their families through education, empowerment, advocacy, and outreach. For 30 years we have pursued our mission through a family-oriented approach, because hemophilia affects the whole family. Our programs bring patients with hemophilia B together from all over the USA, connecting them with their common bond and empowering them to gain support, lifetime friends, and the knowledge needed to make important life decisions.
B Together. B Empowered. B Amazing.
Thank you to everyone for making the 2020 virtual symposium a success! Special thanks to our sponsors, exhibitors and other friends of the community. Enjoy our B Amazing Photo Mosaic (find yourself and your friends!)
COVID-19 Resources
Industry, CDC, medical news and resources to keep our members informed during the pandemic
Gen IX Virtual Leadership
Age, Eligibility Requirements & Registration Here
This online program begins March 1, 2021. Register early by February 5 to receive your box of materials! Don’t forget to check out the new GENERATION IX GAME.
Mental Health and Wellness Resources
We have compiled videos, podcasts and other resources to help improve our physical and mental well-being, plus other helpful links to connect you to outside resources, including hemophilia treatment centers and insurance and benefits resources.
Our Programs
Factor Nine News has a new look and new features for women and teens!
The Bleeders Band
Our own cover band, The Bleeders, has three tracks available for download, from their performance Live in Orlando, FL @ The Coalition for Hemophilia B Symposium 2019. Proceeds from each download benefit the Coalition for Hemophilia B.
Silver Linings: Music Download
Listen to and download the original song Silver Linings, written and performed at the 2019 Beats Music Program.
Featured Video
BScene: Hillary Goldrick
Helpful Resources
on treatment, scholarships, financial assistance, mental health, plus downloadable booklets and podcasts.
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Factor IX News
is our quarterly newsletter to keep you up-to-date with relevant news for the hemophilia B community.
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Interact
Contact the Coalition & follow us on social media to connect with other members of our community.
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Programs
We interact with the hemophilia community through family-oriented educational symposiums, meetings & retreats.
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Expert Team
Guided by a board of researchers, doctors, lawyers, parents & patients, our team has over 28 years’ experience with hemophilia B.
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Mission
We educate, seek to ensure access to the highest standard of care & empower those living with hemophilia to advocate on their own behalf.
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Facts & FAQs
Learn more about hemophilia B: the condition, its transmission, treatment options & more.
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Donate
You can further our mission in providing more programs, resources & support to the hemophilia community.
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